You're not alone

Connecting IIH patients to shared knowledge and support.

Tell Your Story

Your experience with IIH can be meaningful to other patients, especially your strategies for coping with physical and emotional issues. By uploading your story directly to YouTube, you will be giving assistance to IIH patients who are eager to gain your insight into living with this condition.Read More

Introducing Ask Isaiah - an AI Trained Expert in IIH

Isaiah works on a knowledge base built from curated IIH research, clinical resources, and patient guides to give you reliable answers you won't easily find anywhere else.

Ask Isaiah common questions about IIH

Select a question below to get a focused, expert-level answer generated from peer-reviewed documents specific to each topic, not a general web search.

Ask Isaiah anything about IIH

Ask anything about IIH including symptoms, treatments, research, or living with the condition. Isaiah searches the entire knowledge base to find the best answers.

Idiopathic Intracranial Hypertension (IIH) is a condition where pressure inside the skull increases for no obvious reason. It can cause debilitating headaches, vision problems, and a range of symptoms that are often misunderstood or misdiagnosed. IIH Connect exists to help patients navigate their journey, find knowledgeable physicians, and stay informed about the latest research and treatment options.

Learn From Experts

You have questions and we have answers. Explore resources and feel supported every step of the way.

Patient Stories

Connect with others who truly get it. Watch patients share their journeys in their own words, and add your own video to help someone just beginning theirs.

Explore Communities

We're starting with dedicated IIH Facebook groups and expanding to more communities. No one should navigate this condition alone.

IIHConnect.com has been created by NBO Pharma Inc., a U.S.-based company that is developing a drug candidate for IIH. However, it is important to note that this is not a promotional site for our Company; in fact, we welcome content from other companies that have product candidates in development for IIH. Interested parties with product candidates can contact NBO Pharma Inc.