Privacy Policy

1. Introduction

IIH Connect is a healthcare platform designed to connect users with medical specialists and provide health information resources about Idiopathic intracranial hypertension (IIH) through community insights, expert advice, and specialist directories. Users can browse the platform without registration and access available health information and specialist directories. The platform does not support user content uploads or purchases.

IIH Connect is owned and operated by NBO Pharma Inc. (the "Company," "we," "us," "our"), a U.S.-based company that is developing a drug candidate for IIH. However, it is important to note that the platform is not a promotional site for the Company.

The Company respects the privacy and data protection rights of our website visitors and business contacts.

This Privacy Policy (the "Policy") describes the personal information we collect and the policies and procedures we use regarding personal information on IIH Connect.

2. Data Collection

The website collects personal information directly from users in these scenarios:

1. If you are a specialist who treats IIH and would like to submit your details to be considered for our directory. We collect your information through the request form.
2. If you would like to share your experience with the IIH community in a video of 10 minutes or less, we will ask for the public YouTube URL for your video.
3. If you email us a question, comment, inquiry or other request at [email protected].

You do not have a legal duty to provide the above information to us. However, you will not be able to submit a request, or be in contact with us without providing the above information.

In addition, your browsing behavior on the platform is automatically collected through analytics cookies.

3. Processing Purposes

We use your personal information for the following purposes: providing you with the functionality of the website, responding to your email inquiries, and maintaining and improving the website.

4. Third-Party Sharing

We use service providers who assist us with the internal operations of the Service. These companies are authorized to use your personal information in this context only as necessary to provide these services to us and not for their own promotional purposes. Examples of third parties involved: data storage providers, infrastructure and platform providers, and analytics providers;

Except for the publication of contact details of Neuro-Ophthalmologists, Ophthalmologists, and Neurologists, we do not share data with others for their independent use.

5. Artificial Intelligence

If, in the course of using the AI chatbot, you enter personal information, we will use measures to redact the personal information before it is processed by the AI chatbot.

Your AI Chatbot conversation is not stored on our servers. Closing your browser tab or clearing your browser session will erase it.

AI Training

We do not use your personal information to train artificial-intelligence models. When engaging AI providers, we select only providers that undertake not to use personal information for such purposes.

6. Cookies and Analytics

We use Google Analytics cookies to collect information about how you use the platform and the interactions you have with the platform.

7. Third-Party Links

Our website may contain links to third-party websites or services. We are not responsible for the privacy practices of those third parties, and this Policy does not apply to them. We encourage you to review their privacy policies before providing any personal information.

8. Information Security

We implement appropriate technical and organizational measures to secure your information against unauthorized access, alteration, disclosure, or destruction. These measures include encryption of data in transit and at rest, access controls, regular security assessments, staff training, and incident response procedures. While we maintain industry-standard security practices, no system can guarantee absolute security, and we continuously work to enhance our protective measures.

The Company has implemented Transport Layer Security (TLS) via HTTPS to protect data in transit. Access controls have been established to restrict data access to authorized personnel only. These measures are designed to safeguard personal data against unauthorized access and disclosure.

9. Policy Changes

This Policy may be amended from time to time. We will post any changes to this Policy on our website a reasonable time in advance of the effective date of the change, and we will also make efforts to proactively notify you by email of the changes to the Policy if we have your email address. Where the change is material, we will publish a notice to that effect in a prominent place on the website.